Imprint (Impressum)

Information in accordance with Sec 25 Austrian Media Act (MedienG) and Sec 5 Austrian E-Commerce Act (ECG)

Owner and Publisher

EB Community Advisory Board (EB CAB)
(Association in Formation / Verein in Gründung)

Committee of Proponents

The initiative is currently represented and promoted by its proponents:

Melanie Isele - melanie@eb-cab.org, based in Austria
Elizabeth Hoffman - elizabeth@eb-cab.org, based in USA
Rainer Riedl – rainer@eb-cab.org, based in Austria

Contact Information

E-Mail - info@eb-cab.org
Website - https://www.eb-cab.org

Main Objective / Purpose

The EB CAB is an independent, non-profit community advisory board dedicated to representing the collective voice and lived experiences of people living with Epidermolysis Bullosa (EB), their families, and caregivers. The primary purpose of the initiative is to engage directly with researchers, clinical developers, pharmaceutical companies, and regulatory bodies to ensure that therapy development and research align with the real-world needs and priorities of the EB community.

Basic Direction of this Website

Information about the mission, goals, and activities of the EB Community Advisory Board; provision of resources for researchers, industry partners, and community advocates; and communication channels to follow our work or become involved in advisory activities.

Image Credits

Photos kindly provided for DEBRA Austria by Rudolf Hametner, Ludwig Schedl, and Die Abbilderei. All images are protected by copyright law. Reproduction or redistribution without prior written permission is prohibited.

Page last updated: July 2026