Become a Partner
Partnering with the Global EB Community
The EB Community Advisory Board (EB CAB) believes that meaningful patient engagement is highly beneficial to the successful development of new therapies and improved standards of care for people living with EB.
By engaging with the EB CAB, the research community gains access to valuable patient insights that can help make research more relevant, clinical trials more feasible, and therapeutic innovations more responsive to the real needs of people affected by EB. The EB CAB follows the GlobalCAB programme framework — learn more at globalcab.org.
Why Partner with EB CAB?
People living with EB and their families possess unique expertise that cannot be captured through scientific data alone. Their lived experience provides essential insight into the daily burden of the disease, treatment expectations, and unmet needs. Working with the EB CAB can help companies:
Understand the lived experience of EB and identify unmet needs and patient priorities
Improve the design and feasibility of clinical studies
Develop meaningful, patient-relevant endpoints
Strengthen recruitment and retention strategies
Enhance patient communication materials and informed consent documents
Build trust and long-term relationships with the EB community
A Shared Commitment
The development of transformative therapies for EB requires partnership, trust, and a genuine commitment to patient engagement. The EB CAB welcomes opportunities to collaborate with partners who share our vision of placing people living with EB at the centre of research, development, and healthcare innovation.
If you would like to discuss a potential collaboration, we would be pleased to hear from you. Please contact us.